Advocacy

Our goal is to coordinate an advocacy agenda to improve the ability to speak with a more consistent voice to policy makers

Coalition Unites Behind Hospice Recommendations to CMS

On August 27th, the Coalition submitted comments to the Centers for Medicare and Medicaid Services (CMS) re: the hospice survey reform and enforcement remedies provisions contained in the Calendar Year 2022 Home Health Prospective Payment System proposed rule, also known as CMS-1747-P or the Home Health proposed rule. Feedback and recommendations to CMS were focused on several key areas including the need to support effective public reporting, the establishment of a technical expert panel, and the use of multidisciplinary survey teams. Read the entire set of Coalition comments HERE.

Coalition Endorses Community Based Palliative Care Legislation, Applauds Introduction

The Coalition and our 13 national organizational members voted unanimously to endorse the bi-partisan Expanding Access to Palliative Care for Seniors Act introduced by the Co-Chairs of the Senate Comprehensive Care Caucus, Senators Rosen (D-NV), Barrasso (R-WY), Baldwin, (D-WI) and Fischer (R-NE) on July 29. The proposed new legislation, S. 2565, would direct the Center for Medicare & Medicaid Innovation (CMMI) to develop a demonstration of a community-based palliative care payment and delivery model. The Coalition has been working on both a regulatory and legislative strategy to expand access to community based palliative care. Read the Coalition’s Press Release.

Coalition Endorses CONNECT for Health Care Act of 2021 re: Telehealth Coverage

The Coalition, along with over 150 other advocacy and health organizations, endorsed Creating Opportunities Now for Necessary and Effective Care Technologies (CONNECT) for Health Act of 2021 (S. 1512) that aims to permanently remove barriers to telehealth coverage. The Act acknowledges that practitioners can provide high-quality telehealth services in a safe and effective manner and seeks to promote higher quality of care, expanded access to telehealth services, and reduced Medicare spending through relaxation of current reimbursement rules and expanded coverage of additional telehealth services. This bill seeks to make permanent many of the changes CMS made during the COVID-19 public health emergency. See The National Law Review article summarizing the Bill.

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Coalition Submits Comments re: CMS FY 22 Hospice Proposed Rule (and More). Read the Coalition’s full response HERE.

CONNECT Health Act Update. The Coalition, along with several members of the Coalition, have endorsed this legislation because, if passed, it would benefit patients and families with serious illness and permanently allow and expand telehealth services by hospice and palliative care providers. The bill expands coverage of telehealth services through Medicare, makes permanent COVID-19 telehealth flexibilities, will improve health outcomes, and makes it easier for patients to safely connect with their doctors. See the Proposed Bill and Press Release.

Coalition Responds to Discussion Draft of the HCBS Access Act
On April 26, the Coalition submitted recommendations to Senators Hassan (D-NH), Casey (D-PA), Brown (D-OH) and Rep. Dingell (D-MI), on their recently released  discussion draft of the Home and Community Based Services (HCBS) Access Act available for stakeholder feedback. The proposal seeks to mandate HCBS in Medicaid to provide critical services and creating national, minimum requirements for home and community-based services.  One of the Coalition’s primary recommendations is that Medicaid home and community-based services should include access to community-based palliative care for adults and children.

Read the Coalition’s other recommendations.

Coalition Addresses CMS Primary Care First Model’s Seriously Ill Population Delay 
The Centers for Medicare & Medicaid Services (CMS) recently announced the Primary Care First (PCF) Model’s Seriously Ill Population (SIP) is “under review and will not begin on the previously announced April 1, 2021 launch date.” The Coalition met with CMS officials in mid-March to discuss the delay and the Coalition’s Strike Team is currently working on next steps to ensure the beneficiaries facing serious illness will have access to high-quality, person-centered care. Updates for the SIP component will also be posted to the CMS Innovation Center’s Primary Care First Model Options resources page.

Resources

AAHPM Legislative Action Center
NHPCO Hospice Action Network Legislative Action Center
The Patient Quality of Life Coalition - PCHETA Action Center