Call for Public Comment

Open February 1, 2021 and closed March 2, 2021

The Palliative Care Measures Project is requesting feedback through a public comment survey from patients, caregivers, clinicians, and other professionals on the importance of implementing two new proposed patient-reported experience measures that assess the quality of care provided by palliative care teams working in doctor’s offices and clinics:

1. How much patients feel heard and understood, and

2. How much patients get the help they wanted for pain.

Learn more about this project.

The Public Comment Period is officially closed.
Thank you to all who responded to the survey.
Hear NPAF Volunteers, Faye Hollowell and Sa’Brina Davis, discuss why it is important to provide feedback on the two proposed measures:

Public Comment Focus

The goal of the Public Comment period is to provide an opportunity for palliative care providers and teams, patients, caregivers, other interested stakeholders, and the public to provide feedback on the two proposed clinical quality measures being developed under a CMS contract. Learn more.

The two proposed measures fall under the category of “patient reported outcomes performance measures” or “PRO-PMs” which are a new type of measure for palliative care providers to evaluate the quality of care they deliver based upon patient reported experience.

Given the newness of PRO-PMs within palliative care, the focus of the public comment period will be on implementation (rather than measure specifications or data elements) to understand the feasibility of implementing the measures directly from clinicians, patients, and caregivers.


Public Comment Goals

1. Increase awareness and educate the public about the two proposed measures
2. Obtain feedback on the feasibility of the implementation of measures
3. Engage providers, patients, and caregivers to ascertain the usefulness of these measures
4. Obtain support for the measures for implementation – in the CMS QPP Merit-based Incentive Payment System (MIPS) and for endorsement by the national consensus-based endorsement entity (i.e., National Quality Forum) to encourage clinicians to adopt and utilize the measures in practice.

CMS Project Overview

The Centers for Medicare & Medicaid Services (CMS) has provided funding to the American Academy of Hospice and Palliative Medicine (AAHPM) as part of the Medicare Access and CHIP Reauthorization Act of 2015 (MACRA) to develop patient reported outcome performance measures, in the areas of pain management and communication, for palliative care patients with serious illness. The cooperative agreement name is the Palliative Care Measures Project. The cooperative agreement number is 1V1CMS331639-03-00.

As part of its measure development process, AAHPM, along with partners the National Coalition for Hospice and Palliative Care and RAND, requests that interested parties submit comments on the candidate or concept measures.

Under this cooperative agreement, AAHPM is working to advance clinical quality measure development for palliative care patients with serious illness through the engagement of stakeholders with the goal of developing and testing two (2) patient reported outcome performance measures for patients with serious illness while incorporating the patient voice and patient preferences.