External Engagement

The Coalition plays a key leadership role and is a member of several external broad based public policy initiatives that work to advance the access and quality of care for people with serious illness. Below is an example of the cross-cutting policy initiatives the Coalition currently supports.

The National Academies of Sciences, Engineering, and Medicine – Roundtable on Quality Care for People with Serious Illness

The National Academies of Sciences, Engineering, and Medicine convened the Roundtable in 2016 in response to the ground-breaking and seminal report Dying in America Improving Quality and Honoring Individual Preferences Near the End of Life (hyperlink to report) which continue to influence health care policy for those with serious illness and at the end of life. The Roundtable fosters an ongoing dialogue about critical policy and research issues to accelerate and sustain progress in care for people of all ages with serious illness. The NCHPC Executive Director represents the Coalition on this Roundtable.

Patient Quality of Life Coalition (PQLC) 

The Patient Quality of Life Coalition was formed to advance the interests of patients and families facing serious illness, including survivors. The Coalition includes more than 40 nongovernmental organizations (providers, patient advocacy organizations, health systems and other external stakeholders) dedicated to improving quality of care and quality of life for these adults and children. The Coalition has developed a consensus-based agenda aimed at promoting public policy that will improve and expand access to high-quality palliative care. NCHPC Executive Director represents the Coalition on the Steering Committee of this broad based Coalition.

PQLC Support Letter on RAISE Family Caregiving Act

State Pain Policy Action Network (SPPAN)

The State Pain Policy Action Network is an association of leaders, representing a variety of health care and consumer organizations and individuals, who work together in a cooperative and coordinated fashion to effect positive pain policy on the state level—policy that guarantees access to comprehensive and effective pain care for all people living with pain.

Pain Care Forum

The Pain Care Forum is a coalition of diverse organizations with a stake in improving pain care. This group convenes monthly to discuss topics of concern in pain management, and foster consensus development and action when possible.

Friends of AHRQ

The Friends of AHRQ is a voluntary coalition of more than 250 organizations that support the Agency for Healthcare Research and Quality(AHRQ). These groups are either the producers or end-users of the health services research developed by AHRQ. The Friends of AHRQ advocates on behalf of the agency to Congress.

The Pew Charitable Trusts – Improving End-of-Life Care Initiative

The Pew Charitable Trusts convened the undersigned organizations with the goal of developing policy recommendations to address the most pressing issues for seriously ill patients and their families. While our organizations came to the task from different perspectives, we share a common purpose to improve the quality and effectiveness of care provided to patients with serious illness and near the end of life and to contribute to a more sustainable health care system.

Pew Report Recommendations to the new Trump Administration

Coalition Member Highlights

Here’s what happening with our member organization:

Hospice and Palliative Nurses Association (HPNA):
Congressional Briefing on Advance Care Planning, and Defining Hope film screening
November 2, 2017 | Washington, DC

Center to Advance Palliative Care(CAPC) National Seminar:
Practical Tools for Making Change

November 9-11, 2017  |  Phoenix, AZ

HPNA  staff, members and supporters attending the Briefing.

(L-R) Stacie Sinclair(CAPC), Kathy Brandt, Writer/Editor(NCP), Diane Meier, Director(CAPC), Gwynn Sullivan, Project Director(NCP), Amy Melnick, Executive Director(NCHPC)